Health and Social Services Committee

Policy Review: The National Service Framework for Mental Health: Standard 2 - User and Carer Participation

Consultation letter

Eich cyf . Your ref
Ein cyf . Our ref HSS Pol Rev 2 04-MH23 July 2004Dear Colleague,Policy Review: The National Service Framework for Mental Health: Standard 2 - User and Carer ParticipationThe Health and Social Services Committee of the National Assembly for Wales is undertaking a review of aspects of Standard 2 of the Mental Health National Service Framework (NSF) relating to user and carer participation.I am writing to invite you to submit evidence to the Committee.The terms of reference for the review are:To review Key Actions 4 and 7 within Standard 2 of the Mental Health National Service Framework (NSF), as they apply to adults of working age who are covered by the NSF, and also as the principles apply to the elderly and to children and adolescents. In particular to:

1. review the current requirements and guidance for the involvement of users and carers in the development of individual care plans; and
2. review the current arrangements for user and carer participation in planning, design, commissioning, delivery, monitoring and evaluation of mental health services.

The Committee will consult with users and carers as well as service providers and commissioners in undertaking this review.In particular the Committee would like to receive evidence on the following:

1. What does 'full’ and 'genuine’ participation mean to you/your organisation?
2. What are the barriers to full and genuine user and carer participation in:
3. the development of individual care plans; and
4. in the planning, design, commissioning, delivery, monitoring and evaluation of mental health services?
5. How can these barriers be overcome and by whom?
6. What should be the role of:
7. the LHB;
8. the NHS Trust;
9. the Primary Care Team.
10. the voluntary sector;
11. the local authority; .and
12. the service user / carer?
13. Please identify examples of good practice in encouraging full and genuine participation by users and carers in all aspects of mental health services.
14. In addition, the Committee would be interested to have evidence on whether people with mental health problems feel stigmatised, and if so what should be done to eliminate it.

If you wish to submit evidence please send, preferably by e-mail or on disk, otherwise in hard copy, to Claire Morris, Deputy Committee Clerk, Health and Social Services Committee, Committee Secretariat, National Assembly for Wales, Cardiff Bay CF99 1NA. The e-mail address is health-soc-serv.comm@wales.gsi.gov.uk. Please entitle the e-mail Policy Review 2-04-MH.Submissions should be sent to arrive by Friday 22 October 2004. All submissions will be acknowledged. It may not be possible to take into account responses received after this date.When putting together your submission would you please keep the following in mind:

• Your response should be as succinct as possible. Please reference your response using the numbers applied above.
• The National Assembly normally makes responses to public consultation available for public scrutiny and they may also be seen and discussed by Assembly Members at Committee meetings. If you do not want your response or name published it is important that you specify this at the end of your submission.
• Please indicate whether you are responding on behalf of an organisation, or as an individual.
• Please indicate whether or not you would be prepared to give oral evidence to the Committee.

The Committee will consider responses to the written consultation during the autumn. If you have any queries please contact me on 029 2089 8149 or Claire Morris, the Deputy Clerk (tel 029 2089 8148).Jane Westlake
Clerk to the CommitteeCommunity Health Councils - Chief Officer
Local Authorities - Chief Executive
Local Authorities - Directors of Social Services
Local Authorities - Directors of Housing
Local Health Boards - Chief Executive
Local Health Boards - Medical Director
Local Health Boards - Nurse Director
NHS Trusts - Chief Executive
NHS Trusts - Medical Director
NHS Trusts - Nurse Director
1 to 1
3 CDS Three Counties Deaf Support
4 Winds User Led Association
Abertillery Mental Health Self Support Group
Aberystwyth Action Group for Mental Health
Adult Mental Health NSF Implementation Advisory Group
Age Concern
All Wales CAMHS Senior Nurses Forum
Alzheimer's Society Wales
Anheddau Outdoors
Arts Care
Arts Disability Wales
ASBAH yng Nghymru/ASBAH in Wales
Asian Cultural Association
Asian Womens Group
Association of Directors of Social Services
Association of Muslim Professionals
Association of Swimming Therapy - Wales
Atsain - Music Therapy Trust Wales
Awetu
AWFPC
Bangladesh Welfare Association
Bangladeshi Women's Group
Barnados Cymru
Black Environment Network
Black Voluntary Sector Network Wales
Blackwood and District Alzheimer Carers Group
Blue Heather
Brain Injury Service
Brecknock Access Group
Brecknock Carers Centre Association
Brecon and District Contact Association
Bridgend Obsessive Compulsive Disorder Group
British Medical Association - General Practitioner Committee Wales
British Psychological Society (Wales)
Bro Taf Mental Health Voluntary Sector Network
Brynithel Mental Health Self Support Group
Cardiff Carers Network (Mental Health)
Cardiff Chinese Community Services Association
Cardiff Patients Council
Care and Repair Cymru
Care Cymru
Carers Wales
Centre for Mental Health Service Development
Ceredigion Advocacy Network
Ceredigion Mental Health Forum
Changing Attitudes Project
Children in Wales
Children's Commissioner for Wales
Churches' Counselling Service in Wales
Clinical Child Psychologists in Wales
College of Occupational Therapists
Connect 141:121
Contact a Family
Crossroads
Cruise Cymru
Cymdeithas Alzheimer
Cymdeithas Tai Clwyd
Cynon Mental Health Resource Centre
Cynon Valley Mental Health Drop-in
Cynon Valley Mental Health Support Association
Cyswllt Deaf Children's Society
DAFFODILS
Daisy
Dan-y-Deri Mental Health Resource Centre
Deeside Day Care Association
Delyn Community Cares Trust
Depression Alliance Cymru
Dolen
Eating Disorders Support Group
Eating Disorders Wales
Eich Dewis Chi
Forge Centre, Port Talbot
Flintshire Mental Health Advocacy Service
Flintshire Primary Care Service for Children
Growing Space
Gwent Befriending and Advocacy Project
Gwydir Day Centre Llanrwst
Hafal
Health and Social Care Network
Health Commission Wales
Help us to Survive
Home and Community Care Services Ltd
Home-Start Wales
Innovate Trust
Leonard Cheshire Foundation
Llanarth Court Hospital
Llanhilleth Mens Stress Group
Lynx Workshops
M H Carers Support Group
Manic Depression Fellowship
Manic Depression Support Group
Mental Health Advocacy in Carmarthen
Mental Health Advocacy in Pembrokeshire
Mental Health Advocacy Scheme
Mental Health Carers Support Group
Mental Health Drop In
Mental Health Forum
Mental Health Forum Swansea
Mental Health Matters (Bridgend CB)
Mental Health Users Forum
Mewn Cymru
MHRIC
Mid and West Wales M E Group
Mid Glamorgan County Blind Welfare Association
Mind Cymru
Minority Ethnic Womens Network (MEWN)
Montgomery Community Care Project Limited
Montgomery Welfare Committee
Morgannwg League Friends of the Mentally Ill
Multicultural Crossroads Caring for Carers
Multicultural Youth Centre
NCH Cymru
Newport Mind Advocacy
North Wales Advocacy and Advice Association
Pembrokeshire Care Society
Pembrokeshire Deaf Children's Society
Pembrokeshire FRAME Limited
Pembrokeshire Hearing Voices Group
Pendulum Group
Penley Rainbow Centre
People and Work Unit
People in Partnership
Permanent Waves Women's Arts Association
Person to Person Citizen Advocacy
Pontrhydrun MDF Friendship Group
Pontypool Schizophrenia Fellowship
Powys Advocacy Service & EMI Pilot Project
Powys Advocacy Service (Montgomeryshire)
Powys Patients Council
Reflections
Reflections User Group
Rhondda Cynon Taff Health and Social Care Network
Royal College of General Practitioners
Royal College of Nursing (Wales)
Royal College of Paediatrics and Child Health (Wales)
Royal College of Psychiatrists in Wales
Samaritans
Schizophrenia Association of Great Britain
South Glamorgan Mental Handicap Arts Resource
South Monmouthshire Mental Health Project
South Wales Mental Health Advocacy
Sunrise Colwyn Bay
Sunrise Llandudno
Swansea Valley and District Home Care Co-op Swansea Women's Resource & Training Centre
Tenby Resource Initiative
The League of Friends of Pen-y-Fal Hospital
Toc H - North Wales
Unllais
US Network
VAMT Health and Social Care Network Forum
Voices from Care
Welsh Local Government Association
West Glamorgan Lay Advocacy
West Glamorgan Sport for Mental Handicapped
Wordsworth Independent Advocacy Service
Wrexham Advance
Wrexham Care Association
Young Minds